CF Champions provides an online outlet for CF patients and caregivers
to share their experiences of navigating the journey together
DEERFIELD, Ill.–(BUSINESS WIRE)–In support of patients, caregivers and others affected by cystic
fibrosis (CF), Walgreens is launching CF
Champions: Navigating the Journey, Together during The Cystic
Fibrosis Foundation’s National CF Awareness Month.
Walgreens has teamed up with four Champions to share their stories
through the new platform, including their experiences living with the
disease and ideas for meeting challenges such as prevention of
infection, nutrition and rigorous treatment regimens. The program aims
to support patients and caregivers as they navigate their journey of
living with CF.
The CF Champion Ambassadors were selected because they write about
day-to-day life from differing perspectives yet share the common
challenge of living successfully with cystic fibrosis. The Champions are:
Mary and Peter Frey of The
Frey Life. Mary was diagnosed with CF at 7 weeks old.
She and her husband, Peter, manage her CF as a team. Through their
“vlog,” or video blog, they “aim to show the ups and downs of everyday
life with a chronic illness and encourage and inspire others.”
Kristen Chidsey of A
Mind “Full” Mom. Kristen was diagnosed with CF at age 31. Upon
learning of her diagnosis, she also learned that both of her children
have CF as well. She is their CF role model. Kristen is a food and
restaurant editor, and writes a blog about recipes, sticking to a
budget, healthy living and family.
Laura Boyer of Mama
Pure. Laura is the caregiver for her son, who was
diagnosed with CF at 8 days old. She views the diagnosis as her
family’s new normal and does not allow it to disrupt their family or
prevent her son from living fully. Laura, who normally blogs about
stay-at-home motherhood and baby products, will focus some future blog
entries on her experiences as a CF mom and caregiver.
Rachel Young of Jet-Setting
Mom. Rachel’s daughter was diagnosed with CF at 8
months old. The family continues to travel and enjoy their time
together by bringing their CF treatment routine along for the ride.
Rachel writes a blog about travel destinations, services and products.
Gerald Gleeson, group vice president, Walgreens enterprise specialty,
said, “In the community of people involved with cystic fibrosis –
patients, caregivers, health care professionals, researchers – there are
many champions. We have selected some whose lives are touched by CF and
who are also good storytellers, people who can share insights into the
lives of families touched by this condition. We hope we can all learn
something from them.”
By spurring positive conversation about managing their disease, CF
Champions hope to provide motivation, inspiration and the latest best
practices. The program
website also offers trusted resources that simplify the medication
access and adherence processes, and ultimately support patients’ desires
to live happier, healthier lives.
About Cystic Fibrosis
According to the Cystic Fibrosis Foundation, CF is a life-altering
genetic disease which primarily affects the respiratory and digestive
systems1. People with CF carry a defective gene which causes
a loss of the cystic fibrosis transmembrane conductance regulator
protein activity leading to a buildup of thick, sticky mucus. Presently,
there are approximately 30,000 children and adults living with CF in the
About Walgreens Cystic Fibrosis Services
Cystic Fibrosis Services Inc. is a Walgreens Alliance Pharmacy that
provides specialized care to people living with CF. At Walgreens, we
understand every journey is different and every moment is important,
which is why we go beyond simply providing medication to offer a
compassionate, holistic approach to care. Services include:
- Pharmacists with specialized knowledge and training in CF
A wide range of CF medications and products, including hard to find
- The ease of ordering a refill online 24/7
The ability to track your prescription order, view your account
balance and even pay online 24/7
A dedicated team that advocates on your behalf to access the CF
medications you need
Experienced case managers who can research insurance coverage options
so you understand your plan
one of the nation’s largest drugstore chains, is included in the Retail
Pharmacy USA Division of Walgreens Boots Alliance, Inc. (Nasdaq: WBA),
the first global pharmacy-led, health and wellbeing enterprise. More
than 8 million customers interact with Walgreens each day in communities
across America, using the most convenient, multichannel access to
consumer goods and services and trusted, cost-effective pharmacy, health
and wellness services and advice. Walgreens operates 8,173 drugstores
with a presence in all 50 states, the District of Columbia, Puerto Rico
and the U.S. Virgin Islands. Walgreens digital business includes
Walgreens.com, drugstore.com, Beauty.com, SkinStore.com and
VisionDirect.com. More than 400 Walgreens stores offer Healthcare Clinic
or other retail clinic services.
1 Cystic Fibrosis Foundation. Web site. https://www.cff.org/Living-with-CF/Treatments-and-Therapies/Airway-Clearance/Basics-of-Lung-Care/.
Accessed December 2, 2015.
2 Cystic Fibrosis Foundation. Patient registry annual data
report 2013. https://laprensafl.files.wordpress.com/2016/05/2013_cff_patient_registry_annual_data_report.pdf.
Published October, 2013. Accessed November 3, 2015.